What's so interesting about Epidermolysis Bullosa? Lucy explains, "I don't have collagen seven, [which] anchors my skin to my muscles." Basically, the slightest pressure will tear her skin straight off her body like the guy in Poltergeist. "When I was a child, my skin would just slide off when I would fall down. It was like a third-degree burn on my body." To keep her skin where her skin belonged, Lucy had to take special precautions. "I would wear bandages covering most of my body. I would wrap from my shins to my thighs -- I looked like a little cotton ball." Also, you know how taking off a Band-Aid tends to rip out some hair along with it? Imagine that process if your skin is barely clinging to your muscles.
If you think you have a strong enough stomach, you don't have to imagine. (Graphic/heartbreaking content)
So, not only did Lucy have to walk around as a tiny mummy, but the bandages required a complicated process to prevent infections. "If the wounds got stuck to the bandage, you had to soak in a bathtub to get the bandages off. But, it still rips off the new skin. You have to do it twice a week. 'It hurts,' I would yell at my mom to stop, but you have to keep going so you don't get infected." Possible infections Lucy could have contracted from her dirty bandages include staph, MRSA, and Sepsis, which can be fatal.